Patient Videos

Module: Understanding AML

Gayle's story: How did you find out you had AML?
Gayle describes the initial symptoms she experienced and the tests she had leading up to her diagnosis of acute myeloid leukemia (AML).
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Marcia's story: How did you find out you had AML?
Marcia describes the initial symptoms she experienced and the tests she had leading up to her diagnosis of acute myeloid leukemia (AML).
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Thomas' story: How did you find out you had AML?

Thomas describes the initial symptoms and experiences he had leading up to his diagnosis of acute myeloid leukemia (AML).

In kind memory of the passing of Tom Greene who wanted to share his experiences with others suffering from AML.

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Gayle's story: What advice do you have for other patients on their journey with AML?
Gayle shares practical advice for other people with acute myeloid leukemia (AML). She says it is critically important to go to a major hospital center that specializes in treating AML. Gayle completely trusts her whole medical team and the medical plan that she in on.
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Marcia's story: What advice do you have for other patients on their journey with AML?
Marcia shares her advice for other people on their journey with acute myeloid leukemia (AML). She says it is very important to stay strong, positive, and courageous. She is extremely grateful to her team of doctors and nurses who have saved and changed her life.
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Thomas' story: What advice do you have for other patients on their journey with AML?

Thomas shares his experiences and advice for other people on their journey with acute myeloid leukemia (AML). He recommends staying as healthy as possible by maintaining healthy habits and taking precautions against germs and bacteria. Because of his age, Thomas decided against having a stem cell transplant.

In kind memory of the passing of Tom Greene who wanted to share his experiences with others suffering from AML.

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Module: Understanding AML-MRC and tAML

Mike's story: How did you find out you had AML?
Mike describes the symptoms and experiences he had leading up to his diagnosis of acute myeloid leukemia (AML).
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Mike's story: What advice do you have for other patients on their journey with AML?
Mike shares his experiences and advice for other people on their journey with acute myeloid leukemia (AML). As hard as it is, he says it is very important to be prepared, maintain a positive attitude, and to stay focused.
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Module: Diagnosing AML, AML-MRC, and tAML

Gayle's story: How was your AML diagnosed?
Gayle describes the tests and process she went through when she was diagnosed with acute myeloid leukemia (AML). She talks about her experience of being immediately admitted into the hospital, having a bone marrow biopsy, and how she felt when she learned of her diagnosis.
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Marcia's story: How was your AML diagnosed?
Marcia describes the process and tests she had when she was diagnosed with acute myeloid leukemia (AML). She also talks about what her doctor told her and how she felt when she learned of her diagnosis.
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Mike's story: How was your AML diagnosed?
Mike describes the diagnostic process and tests he had when he was diagnosed with myelodysplastic syndrome (MDS) and then acute myeloid leukemia (AML). Mike had MDS for about 6 months before progressing to AML.
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Thomas' story: How was your AML diagnosed?

Thomas describes the tests he went through when he was diagnosed with acute myeloid leukemia (AML). He describes having a bone marrow biopsy, which he says he tolerated quite well, with no discomfort or pain.

In kind memory of the passing of Tom Greene who wanted to share his experiences with others suffering from AML.

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Module: Treating AML

Gayle's story: What has been the biggest challenge for you with your AML?
Gayle describes the biggest challenge she has faced with her acute myeloid leukemia (AML), which is to accept that she is different since her diagnosis, and has had to adjust to lower energy levels and brain fog.
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Marcia’s story: What has been the biggest challenge for you with your AML?
Marcia describes the biggest challenge she has faced with her acute myeloid leukemia (AML), which was to emerge from treatment and embrace her life again as the new person she has become since her diagnosis.
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Mike’s story: What has been the biggest challenge for you with your AML?
Mike describes the biggest challenge he has faced with his acute myeloid leukemia (AML), which is the emotional burden of the impact on his family. Mike has found great support from his wife, hospital social workers, and therapists.
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Thomas' story: What has been the biggest challenge for you with your AML?

Thomas describes the biggest challenges he has faced with his acute myeloid leukemia (AML), which are the impact on his day-to-day life and high susceptibility to viruses and infection. This impacts his travel and ability to be around a lot of people, but he wears a respiratory mask and takes precautions. He says he was fortunate to never experience any side effects from his medications.

In kind memory of the passing of Tom Greene who wanted to share his experiences with others suffering from AML.

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Gayle’s story: What has been the biggest success for you with your AML?
Gayle talks about the positive experiences she has had so far in her journey with acute myeloid leukemia (AML). She considers the greatest success to be the bone marrow transplant she underwent. Fortunately, she had very few side effects. She also reflects on being able to accept her new life. She climbed Mount Kilimanjaro 18 months after her bone marrow transplant, which she considers a huge accomplishment although she realizes she may have pushed herself too much.
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Marcia’s story: What has been the biggest success for you with your AML?
Marcia talks about the successes she has had so far in her journey with acute myeloid leukemia (AML), which is to keep going, accept her new life, and to be able to share her story with others.
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Mike's story: What has been the greatest success and greatest treatment challenge with your AML?
Mike describes the positive experiences and successes he has had so far in his journey with acute myeloid leukemia (AML). He has a whole new appreciation for life. He has learned to know his limits and works closely with his doctors to stay on track with treatments and to stay as healthy as possible.
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Thomas' story: What has been the greatest success and greatest treatment challenge with your AML?

Thomas talks about the successes and challenges he has experienced with various treatments for his acute myeloid leukemia (AML), the most positive being when he achieved remission. Unfortunately, since then his AML has returned. Thomas says he tries to remain strong and not get too upset about it.

In kind memory of the passing of Tom Greene who wanted to share his experiences with others suffering from AML.

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Module: Treatment Failure and Relapse in AML

Ed's story: What has your AML diagnosis and treatment journey been so far?

Ed describes the tests and experiences he had leading up to his diagnosis of myelodysplastic syndrome (MDS), and his subsequent diagnosis of acute myeloid leukemia (AML).

In kind memory of the passing of Ed Oasa who wanted to share his experiences with others suffering from AML.

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Ed's story: What has helped you cope on a daily basis with your AML diagnosis?

Ed shares his experiences about how he copes daily with his acute myeloid leukemia (AML) diagnosis.

In kind memory of the passing of Ed Oasa who wanted to share his experiences with others suffering from AML.

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Ed's story: What advice do you have for other patients on their journey with AML?

Ed shares his experiences and advice for other people on their journey with acute myeloid leukemia (AML).

In kind memory of the passing of Ed Oasa who wanted to share his experiences with others suffering from AML.

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Paul's story: How was your AML diagnosed and what experiences have you had with treatment?
Paul describes the symptoms and tests he had leading up to his diagnosis of acute myeloid leukemia (AML), as well as his experiences with AML treatment.
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Paul's story: What advice do you have for other patients with AML?
Paul shares his experiences and advice for other people on their journey with acute myeloid leukemia (AML).
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Peggy's story: How did you find out you had AML?
Peggy describes the symptoms she experienced and the blood tests she had leading up to her diagnosis of acute myeloid leukemia (AML). She also talks about her treatment journey thus far, including blood transfusions and medications.
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Peggy's story: How did you first cope with your diagnosis of AML?
Peggy shares her experiences about how she coped in the first few months after her acute myeloid leukemia (AML) diagnosis.
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Peggy's story: What advice do you have for other AML patients managing treatment side effects?
Peggy shares her advice for other people on their treatment journey with acute myeloid leukemia (AML). She says it is important to trust your doctor and to lean on the support of family and friends. She also says it's important to take time to rest.
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Module: Maintenance and Continuous Treatment in AML

Ed's story: What transfusions do you receive for your AML?

Ed describes the red blood cell transfusions he receives every two weeks for his acute myeloid leukemia (AML). He also talks about the platelet transfusions he receives for this low platelet counts.

In kind memory of the passing of Ed Oasa who wanted to share his experiences with others suffering from AML.

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Paul's story: What has your experience been with AML maintenance treatment?
Paul describes the experiences and results he has had so far with maintenance treatment for his acute myeloid leukemia (AML).
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Paul's story: How have you managed side-effects from your AML maintenance treatment?
Paul talks about how he manages the side-effects of the maintenance treatment he receives for his acute myeloid leukemia (AML).
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Paul's story: How has your AML treatment impacted your quality of life?
Paul shares his experiences about how AML treatment has positively impacted his quality of life.
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Paul's story: How is your AML being monitored and followed over time?
Paul describes the ongoing monitoring he receives from his healthcare team for his acute myeloid leukemia (AML).
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Paul's story: How long will you be on AML maintenance therapy?
Paul describes the expected duration of the maintenance treatment he receives for his acute myeloid leukemia (AML).
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Peggy's story: How is your AML being monitored while you receive maintenance therapy?
Peggy describes the medications and ongoing monitoring she receives from her healthcare team for her acute myeloid leukemia (AML). She also talks about the bone marrow tests she receives regularly.
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Peggy's story: How has your AML treatment impacted your quality of life?
Peggy shares her experiences about how acute myeloid leukemia (AML) has impacted her quality of life, comparing how she felt when she first started treatment to how she feels now. When she first started treatment, she was tired all the time, but now she travels and can do many of the things she enjoys. Peggy says it is critically important to lean on the support of family and friends.
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This educational activity has been developed by the Myelodysplastic Syndromes Foundation, Inc. and Mechanisms in Medicine Inc.

This activity is supported by educational grants from AbbVie, Acceleron, Bristol-Myers Squibb, Celgene Corporation, Daiichi Sankyo, Jazz Pharmaceuticals and Takeda Oncology.

This website is part of the Animated Patient™ series developed by Mechanisms in Medicine Inc., to provide highly visual formats of learning for patients to improve their understanding, make informed decisions, and partner with their healthcare professionals for optimal outcomes.